It is early, as it usually is when I walk in to listen to the little hearts and lungs, measure the harmonies of their breathing, and watch the redness return to the tips of their fingers when I let go. Sometimes parents stir, and you get to be the first face they see in the morning before they search for that of their child’s.
Did their lungs sound okay? Are they breathing okay? Is it going to be an okay day today?
But the experience becomes different when that early morning visit is to deliver news of the bubble of uncertainty they are currently residing in. To watch a parent’s face fall apart as they are told the big “C” word as attendings try to make promises to find answers, to provide them with some answers that will be their solace in comparison to this uncertainty. They probably will not remember this conversation as much as they may remember that single sentence.
There is a consistent pattern when they hear it. I can see their mind working to process, at an astronomical rate, and they try to maintain their composure until their eyes leave yours and rest on their child inches away from us, and their face crumbles.
I thought that would be the hardest moment.
However, I quickly learned that there is more that happens that makes this difficult. It is when they spend days in the unit with you getting to know them after they have that preliminary news that you gather their story. You learn about the sports they love, the games they played with their siblings, the food they wished they could eat but couldn’t because of all the diagnostic procedures. You learn their favorite colors, and watch as their hospital room becomes more and more their own each day. A new poster, a new toy, or the addition of a piece of home. It is when the test results come back and you learn about the next steps or the limited time that you break with the parents.
Because suddenly they are not a new diagnosis.
They are the child that loves superman or the child that always sleeps with mom next to her or the child that wants to get back to football.
It is then that it becomes much harder to let their fingers go every morning.
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